Exploring Vocal Challenges In Individuals With Parkinson's Disease: Insights From The Social And Family Sphere
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Abstract
Background: Parkinson's disease (PD) is a multifaceted neurodegenerative condition manifesting in adulthood, characterized by a spectrum of motor and non-motor symptoms. The alteration in the voice of individuals with PD can significantly impact their communication dynamics with the surrounding environment, influencing the perceptions of those around them.
Objective: This study aims to assess the perception of vocal difficulties in individuals with Parkinson's disease from the perspective of their socio-family environment.
Methodology: A cross-sectional descriptive observational study was conducted involving 17 relatives of individuals with Parkinson's disease, comprising family members and friends acting as primary caregivers in the city of Lahore. Data were collected through in-person surveys, utilizing an adapted version of the VHI-30 questionnaire.
Results: Of the participants, 71.2% were aged over 40, with 76.5% being women, and spending more than 5 hours daily with their family members afflicted by PD. A significant 76.4% acknowledged a specific impact related to vocal difficulties in their PD-affected family member, considering functional, physical, and emotional criteria. Within this group, 29.4% reported mild to moderate difficulties, while 47% reported severe to very severe difficulties.
Conclusion: Family members and caregivers exhibit varying degrees of perception regarding the vocal challenges faced by individuals with Parkinson's disease. Recognizing the impact on functional, physical, and emotional aspects is crucial. Inclusive therapeutic interventions that involve the socio-family environment are essential for effectively addressing the challenges posed by the disease.
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